Mary Lee McNelis was born in 1995 with significant medical challenges caused by an interstitial chromosomal deletion – a rare genetic anomaly that is usually fatal. Among the many challenges for Mary Lee were developmental delays.
By age six, she still wasn’t speaking. That’s when Phyllis Knighton, Mary Lee’s grandmother and a retired public school teacher, stepped in.
Phyllis Knighton holding Mary Lee McNelis in Kalamazoo, MI, in 1996. Photo courtesy of Laura Livingstone-McNelis.
Mary Lee’s first words, June of 2001. Image courtesy of Laura Livingstone-McNelis.
This story comes from two separate conversations recorded almost 20 years apart (in 2007 and 2025): one between Phyllis and Mary Lee’s mom, Laura Livingstone-McNelis; and another between Laura and Mary Lee herself. In them, three generations of women remember the summer of 2001 when against all medical odds, Phyllis defied the odds and taught her granddaughter how to speak.
Phyllis Knighton and Mary Lee McNelis reading together in Farmington Hills, MI, June 2001. Photo courtesy of Laura Livingstone-McNelis.
Top photo: Phyllis Knighton, Laura Livingstone-McNelis and Mary Lee McNelis in Frankenmuth, MI, December 2014. Photo courtesy of Laura Livingstone-McNelis.
This broadcast is supported in part by the Corporation for Public Broadcasting, a private corporation funded by the American people, and the National Endowment for the Arts.
Originally aired September 12, 2025 on NPR’s Morning Edition.