“How has your life been different than you imagined?” Brianna asked her mother.
“I didn’t imagine that I would be in the forefront of new genetic revolution to diagnose more diseases than ever, but not be able to treat those diseases.”
On our first day of interviews in Springfield, Massachusetts, Brianna and Therese came to the booth to talk about their lives with Mitochondrial Disease. Therese was not diagnosed with the disease until 2001. Since then, she has become an advocate for the disease, organizing and educating locally and nationally.