“How has your life been different than you imagined?” Brianna asked her mother.
“I didn’t imagine that I would be in the forefront of new genetic revolution to diagnose more diseases than ever, but not be able to treat those diseases.”
On our first day of interviews in Springfield, Massachusetts, Brianna and Therese came to the booth to talk about their lives with Mitochondrial Disease. Therese was not diagnosed with the disease until 2001. Since then, she has become an advocate for the disease, organizing and educating locally and nationally.
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The MobileBooth was filled with oodles of new mommy love as Tara Luce and Amber French told the story of the birth of their daughter, Isabel. Although Isabel is only 3 months old and may not remember this conversation when she grows up, it will be waiting in the American Folklife Center at the Library of Congress to refresh her memory.
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On August 28, 1963 Dr. Martin Luther King delivered his “I Have A Dream” speech from the steps of the Lincoln Memorial during the March on Washington for Jobs and Freedom. According to U.S. Congressman John Lewis, who also spoke that day as the President of the Student Non-Violent Coordinating Committee, “Dr. King had the power, the ability, and the capacity to transform those steps on the Lincoln Memorial into a modern day pulpit. By speaking the way he did, he educated, he inspired, he informed not just the people there, but people throughout America and unborn generations.”
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