“I live fully and wholly with you.”
Alisa Guthrie, 30, brought her husband Christopher Cogle, 36, to the StoryCorps MobileBooth and interviewed him about living with Emery-Dreifuss muscular dystrophy.
Christopher explained that as a student in medical school he learned he could die suddenly of his type of muscular dystrophy. However, thanks to his heart donor, he has about another 30 years to raise a family with Alisa and continue putting his medical expertise to work with his cancer patients.
When asked about meeting Alisa for the first time, Christopher recalled, “I was instantly in love with you. I actually felt like it was irresponsible of me because I didn’t want you to hang your hat on someone who wasn’t going to live.”
Alisa assured Christopher that she wouldn’t want it any other way responding. “I don’t see it as a burden. I feel like I live fully and wholly with you. I thank you for that.”
4 comments
They were lovely. I had the pleasure of facilitating their conversation and I still think about them all of the time.
http://www.storycorps.org/blog/east-mobilebooth/gainesville-fl/heart-to-heart/
They were lovely. I had the pleasure of facilitating their conversation and I still think about them all of the time.
http://www.storycorps.org/blog/east-mobilebooth/gainesville-fl/heart-to-heart/
Hello there. I just read this short page and im really interested in knowing more about you. My name is Dustin Reece and I live in Texas. I’m 29 years of age and Im diagnosed with Emery-Dreifuss MD as well. I have always wanted to meet another person with the same disorder as me. If you get this and are not bothered by me, I would like to hear back from you. Best of luck with your health and your family. Thanks so much!
Hello there. I just read this short page and im really interested in knowing more about you. My name is Dustin Reece and I live in Texas. I’m 29 years of age and Im diagnosed with Emery-Dreifuss MD as well. I have always wanted to meet another person with the same disorder as me. If you get this and are not bothered by me, I would like to hear back from you. Best of luck with your health and your family. Thanks so much!
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